Kadyn is still admitted. He still isn't really eating and is starting to become very irritable. Tuesday Kadyn had a total of 20 seizures and yesterday he had 1. 1 while sitting up. He also gets very uncomfortable while sitting up. Today the Neurosurgeon said that they are not going to rule out shunt malfunction but as long as his stats are okay they don't want to think that it is. They are working closely with Neurology and come in Kadyn's room every couple hours to check on him. They are unsure as what to do. They said that they may do a dye injection today to see if his shunt is flowing and to 100% rule out it being his shunt. Neurology is trying to figure out what else to do because he is already on 5 medications plus the ketogetic formula.
Friday, May 21, 2010
It's very hard to explain to the doctors that Kadyn is putting his bottle in his mouth but he isn't drinking any, he uses it for comfort. He drank maybe 8 ounces yesterday and today he drank 4. The rest spills out the side of his mouth or all over his face or even the floor. I told them I am not leaving until Kadyn is eating, they said, You can't leave until we get this figured out anyways. Kadyn has never had that many seizures in one day ever. So Children's Hospital of Michigan is our home for now. How long will we be there? I can't say. If Kadyn wakes up from this nap wanting to eat, I'd love to go home today, but that won't happen. My head hurts along with my heart. Usually I have all the answers and right now I have none.
Posted by Sara at 5/21/2010 08:15:00 AM