From Clinic to Admission.,

So today was very scary. I woke up at 11am and jumped outta bed to see Kadyn still sleeping. I thought maybe I was so tired that he woke up and played quietly and went back to sleep. Although this has never happened before. So I went to go get ready for the day and then i her a gasping breath. I run into my room and Kadyn was having a seizure. I comfort him until he stops and goes back to sleep. Hmm. So I then start packing our bags. I hear another Gasp, I run back and he is seizing again. He stopped and went back to sleep. I then got him an outfit and got him out of bed to get him dressed and head to the Clinic. I tried to feed him before but he wanted nothing to do with it. So then I headed to Children's. There were a lot of sick shunt patients there today. So we waited and he ended up having 5 more seizures while waiting. Got back to see the nurse and he had 3 more right in front of her. So she ordered CT scan, Xray and lab word. He did everything well and had 2 seizures while waiting for Labs, 1 while waiting for xray and then one terrible one while on the CT scanner and they almost called the Rapid Response code. He luckily came out of it before. So we went back to clinic where he had 2 more seizures and they decided to do a shunt tap. His pressure went up to 30, that is BAD! She decided to take 6 cc's out and it went back down to 2. So 30 is too high and 2 is kinda border line to low. So then she said she doesn't know and that she would consult with the Surgeon and go from there. So we are admitted now. While we waited for a bed he had 2 more seizures and upstairs he had 2. 17 seizures today is not normal. I am convinced it is his shunt. He hasn't eaten today and although he felt a little better after she took the fluid off he eventually got really irritable again. We will see what the neurosurgeon says later or in the morning. :( My poor little guy!