Sunday, July 5, 2009

Kadyn got a haircut...

Before
After

So he was long over due for this!! His long hair kept that baby face I love so much. Now he actually looks like a big boy. A 2 year old. Sigh. Kadyn is getting soo big. Kadyn is not feeling good today at all. It started yesterday. He started running a fever, and I was at my parents house doing laundry. Well he was laying in bed with nothing but a tshirt and diaper on and he just started sweating and turned bright red, and my fan was on and it wasn't hot in the house at all. I was moving around and wasn't hot, so I left my laundry scooped him up and brought him back home. Took his temp 99.5. Not high enough to take him to the hospital. He also has runny poop. He has been sleeping all day now. He woke up to take a bottle. I took his temp 98.9. So idk. I am going to see how he acts today and everything. If he doesn't improve ill be calling his neurosurgan tomorrow. Hopefully it's nothing. Hopefully it is just a virus.


Friday, July 3, 2009

Something kinda creepy

So I was sitting here, checking my webpages and email, while Kadyn was sleeping. No big deal. Then I hear Kadyn wake up and for five minutes he was moving both hands like he was waving. His eyes were wide but not dialiated. I said Hi Kadyn and he smiled. He then rolled over and went to sleep. Now he is asleep. What I want to know is, was that some kind of seizure or did he wake up and then decided he would rather go to sleep. I am confused!

I'll talk to his doctor about it in the morning. That was just weird.


WEll he is back to sleep so I am going togo to sleep now. I have a lot of laundry and cleaning to do tomrrow.

Thursday, July 2, 2009

Guess who is two?

Kadyn is two. Today is Kadyn's 2nd birthday. How did we celebrate?

Well I'd have pictures but...my camera is gone. The battery died and I can't find the charger. So I bought a new one. (charger) I am waiting for it to be sent to me.


Anyways.


Happy 2nd birthday to the love of my life Kadyn.


We have cupcakes today to celebrate. We also had baby cereal. I wanted to see if he would eat it. He took a few bites. So I am hoping he will eat that also to help out with gaining some weight. We pretty much lounged all day long. After a long day at cedar point his dad and I had we were all just tired. My face is burnt. Kadyn stayed with his grandma. He really enjoyed his time there.

Harvey and I really enjoyed our time in Cedar Point. We rode all the rollar coasters and rides 2 times. Then rode some 3-5 times. It wasn't busy at all there. Our longest wait was 15 minutes. It was nice out all day long, and rained right before we left and of course we were already on a ride, so we got soaked. It was worth it though. Now my ankles hurt from walking so much and my face hurts from being burnt, but I was happy for my mini vacation. Though I missed Kadyn terribly. I called and checked on him 15 times until my mom finally yelled at me and told me to not worry that he is fine and to have a good time. It was awesome!

Well Kadyn's birthday has been very relaxing which is good. He is teething. Getting his top molars in, but he doesn't seem to be bugged by it at all. Thankfully. We got him an orange monkey that is very soft and says Cedar Point on it. He loves it! He hasn't stopped playing with it. Such a cute boy. As soon as I get my charger back I'll be taking a ton of pictures!

Saturday, June 27, 2009

Kadyns Birthday party

What a beautiful day it was for Kadyn's birthday party. It was 82 degrees, partly sunny and breezy. Perfect


Kadyn decided to nap before his birthday party. This was perfect as I was able to set up his decor and clean the pool and do what I needed to do. Thank you Kadyn
During the party we had a pool, in the red shirt is my nephew Michael..and there is Harvey throwing his godson into the water.

Kadyn was so happy. He was in a ok mood.
Kadyn loved when we all sang happy birthday to him. He was a little angry to be in his high chair because it was a little warm for him, but as soon as we started singing...he just listened. I would to thank Kadyn's Uncle Josh for recording the video for me!
video

Kadyn enjoyed a couple bits of cake...
All in all it was a great day, pretty much everyone who was invited showed up. There was also slip and slide that didn't really get used but i think ill have good pictures later on of others using it. hehe
Kadyn did have a small seizure...but it think it was due to the heat because as soon as I got him in and a fan on him, he was back to normal. So I'll just keep him home and watch him. He is in a great mood now playing with his new toys.
I will have more pictures on his actual birthday. :-) as we will be doing cake that day. Thats it though, just kadyn and everyone who lives here will be doing cake adn singing happy birthday











Thursday, June 25, 2009

Guess what Kadyn is doing right now..






He is sitting straight up in his high chair. He sat straight up for maybe 5 minutes then begun to get uncomfy, Now I have it reclined and he is enjoying dragon tales. My lil man is getting so strooonnng!

Wednesday, June 24, 2009

Bath day

Today was bath the children day. I consider my dog my child also, though sometimes i wanna open the gate and hope she runs away. Just sometimes. LIke when she chewed my hundreded dollar work shoes. But the positive thing is I'd miss her and the shoes can be replaced but she can't be. I gave Korona (dog) a bath first. That was a pain. I decided to do it outside because it's still sizzleing outside. So i chained her to the fence. Just so I wouldn't have to chase her around the yard. I used the hose and I am sure it felt nice seeing as it was hot out. Then shampooed her adn thats when she deicded to shake. Needless to say I got shampoo in my eyes...so I decided the best course of action would be to hose my eyes, seeing as i had shampoo on my hands. So that felt great. So now I'm soaked. Well got her finished and took her off the chain to put her in her kennel nad she runs and hides in the dirt behind a bush. AHHH! So convinced her to come out, hosed the dirt off her then put her in the kennel. I decided that before I bath Kadyn we would take a ride to Mcdonalds and get me a sweet tea. I get half way there, I forgot my money. Luckly i had just enough change ($1.06) to get me one. Though I wanted to get two, once for now and one for later, I just figured I'd go out again if I needed it. Well i get home and take Kadyn upstairs and put him in his chair in the tub. I turn the shower on and begin to bath him. As I turn around I notice he peed on his hands! UGH So now I have to fight him to keep his hands outta his mouth until I wash them with soap a million times. So after him screaming over it, I rinsed his hands off after washing them and well let me just say they did not go for his mouth! Well after his bath I decided to try and brush his teeth again. I haven't done it in a while because he didn't like the feeling. Well if I ever heard him crack up it was now. HE loved it! Thank goodness. He also cracks up when you use the shower on him. It's faster to use the shower also, and plus with him not sitting up it's easier. Since he is too long for hsi chair, but it is doing good for now. I also cut Kadyn's hair a little. Well not much, just the really long pieces. It still gets messy but he kinda causes that. When I brushing his hair he kept putting his fingers through it, and I guess he likes the messy look.









I was also going through his pictures and wow. Has he grown and changed so much. He truely doesn't look like the same baby at all. He is starting to lose that baby face and getting what I call his toddler face. Sigh. It's funny, I tell people he is two and they get 1 of 2 reactions.
1 is, wow he is a long for a 2 year old
or
2 He looks so young in his face.
I like both of them :-)

The pictures are in order from when he first came home until the other day. I swear he doesn't look like the same child from birth and now. He is amazing little fighter. That is actually what his name means. I am sure I have mentioned that before!

I still am in awe that it's been two years. Kadyn has come so far. He has overcome so much in this short 2 years. He has gone through more than any child should go through. He has fought this battle and has won. He deserves a gold medal! I swear. He is finally doing so much better and I am so thankful for this. It seemed like for a year things just weren't looking good. I honestly almost gave up hope on things every being "normal" for him. I am glad I didn't because i know Kadyn can feel when I am upset. I know it isn't good for him to feel me stressed and down. So I hold my chin up for him. He is my angel.

He is getting ready to go to sleep now. I have him in just a diaper so that way in the morning I just have to change his diaper and put a romper on him.

Goodnight everyone!

Tuesday, June 23, 2009

Neurology appointment Thursday

Well Thursday is Kadyn's Neurology appointment. He has not seen them in over a year due to him always being in the hospital. They actually made his appointment for December but his lovely doctor squeezed him in earlier. Thankfully. So tomorrow I have to work then plan more for Kadyn's party. Which is almost here. This Saturday! Then after that Kadyn's father and I are taking a trip to Ohio, where we will go to Cedar Point and RIDE ON! I am excited. Then our next trip is going to be back in Ohio for the Toledo Zoo. That is Kadyn's birthday gift from us. We didn't really get him anything because He doesn't need anything and everything that he does need, or want I guess, my family already has plans on getting it for him. So we decided a trip to the zoo would be good enough for him. Well that will be a fun filled picture day as will Saturday. I am excited. I am going to ball my eyes out again haha! I can't believe Kadyn i two years old, and I look back through the past two years and it's like i have been through sooooo darn much it's crazy!



2 shunt infections, 5 revision, 14 shunt related surgeries, 2 port surgeries over 50 hospitalizations, numerous ct scans and xrays also shunt taps, him pulling his EVD out the night before MOthers day, Christmas Eve when he was soo sick I was terrified and cried for the first time since everything started. Now I have peace. I had a little interruption but Kadyn decided that he liked it at home better. Peace and quiet. I actually have been sheltering Kadyn a bit just to make sure he is not going to have any seizures before his birthday party. I haven't been taking him out much because the heat will cause his to seize, and I have been keeping him cool and away from everything. I feel terrible but I want him to be completely healthy for saturday. He did however go and pick out his birthday decorations with me. He was happy with dinosaur things. I don't think he minded. I got balloons with dinos on them, and regular balloons. The colors are pretty much orange and green because it matches so we have orange and green helium balloons, with orange and green streamers. Orange forks, and plates, dino plates also, and green napkins.



On the menu



Pizza

Fruit salad

juice

pop

tea

bread sticks

chips

pretzals

Cheese cake (for kadyn)

Dino Cake (for kadyn and everyone)

and whatever anyone brings



Agenda:

Eating

Swimming

Looking back on all his baby pictures (slideshow)

Singing Happy birthday

Cake

Presents

And whatever else :-)



Afterwards

Kadyn goes to his Nana's

Clean up

Relax





I am excited to see my new niece again. I haven't seen her since she was born. I am excited!



She is sooo adorable!



Well hope everyone has a goodnight!