Sorry I have been MIA!

Hi! *waves*. Sorry I have no been blogging a lot lately. I have hardly even been at my computer. Busy trying to start my new job, taking Kadyn to and from school, on top of cooking dinner and keep my house clean, laundry and what not I have hardly had any time for myself. I am hoping to get back into blogging here soon!


Kadyn has been doing great since starting his Cytra-3. He seems happier and he is sitting up more again. I am pretty sure he is feeling a lot better by now. He sits up so much faster now. He just rolls over and he goes up. It's so amazing to watch! He has come so far from last month that it just keeps getting better and better. I love watching him trying to do so many new things.

He is still going to school. He still loves it. I take him everyday and pick him up. He gets excited when I get him from school. I think after 6 hours of it, he is over it quickly and wants to go home to lay in his bed to nap, or just be home. I can't blame him either way.

Today is Valentines Day. We are all going to dinner today. Kadyn, Harvey and I. We are using a gift card that we got from Harvey's grandma for Christmas to go to dinner. Which will be nice. Even if Kadyn does not want to be there. I will make the best of it! :D


Well I better get ready to go get Kadyn from school now.

Kadyn vs Hydrocephlaus

I would never wish this condition on my enemy, not that I have any. It's such a hard guessing game and a roller coaster. Or even a strategic game where you have to contemplate your next move. Knowing that my decision to take him to the ER or wait for an office visit in the morning could effect my son in so many ways. Yet everything is pointing to NSG office visit WHY? He is not seizing. The way he has been acting, all the signs are here if you slowly put them together. He has not been eating well, he has not been very talkative, he blinks his eyes a lot, like he has having headaches, I am pretty sure they are headaches. He has been super moody at home and even in school and he loves school! He stares off like he isn't even here and he constantly wants to be touched by either Harvey and I. Kadyn hardly ever wants this. Then he will have little bursts of energy like, everything is ok. He is sleeping a lot more and I just need to know. Subjecting him to more radiation seems a far less of a worry when it comes to easing my mind on Kadyn's life saving device in his brain. You also bet that I am going to make sure they do a shunt tap, because that is really the only way they can for sure tell, as most the time, Kadyn's ventricles do no increase in size. I would be surprised if they did increase. I hardly see Kadyn smile anymore, and I just want my son back. I KNOW SOMETHING IS WRONG and this is more than viral. He isn't congested, coughing or anything that would make me think flu or virus. 

I will update after we go to see his NSG. 

Super Bowl Party at School

Today, Kadyn had a super bowl party at his school. So he wore a football outfit today! He also colored a picture, got stickers and got a prize. Oh he made a horn too! He also did something amazing. He ate 1/2 of his yogurt. I mean he loved it too according to his teachers. This makes me such a proud mommy! He is really blossoming :D SOOO AMAZING!!! WOOOO

Detroit Tigers

The last time Kadyn was admitted to the hospital, we were there at a good time to meet two Detroit Tigers players. I honestly do not follow baseball, nor do I follow any sport really, but it was a nice opportunity to meet two baseball players. Not to mention they were pretty goofy, but they were funny.


If anyone can tell me their names it would be awesome. But seriously the tell one with the huge smile...cutie! :D (hehe)

Work in progress

I haven't had much time to blog lately. Between cleaning my home, taking Kadyn back and forth to school and decorating my home, it's been rough. The dining area is pretty much done. So here is a sneak peak at the decor that is through out, or going to be through out the house. I want to do a digital tour of the house again once it is all finished, which maybe a little while.

But here is my Dining area:

It's a cell phone picture too, but I'll be using my normal camera once I get everything the way I want it.


Tomorrow Kadyn has a doctors appointment. Hopefully it goes by quickly. I am already sad that he has to miss school because of it, but it's one day and I think he will be ok.

Kadyn has been doing great though. It seems whatever was causing him to be so sick has finally left his body. Also I paid for his new medication to be delivered here and when he starts that, his body will do better on this diet. It seems the diet has finally take it's toll on his body acid wise, but we will fight against it to keep his seizure control. Going back to the life of the every day seizures is not where we want to be at all. We knew the risks of this diet but they for sure did not out weigh the benefits of some day being seizure free. Since Kadyn's been having less seizures he seems to be hitting more milestones. All though this week he kind of stopped sitting up a bit and I am hoping it's the weather, or perhaps he is just taking a break. I have no idea. I can only pray he will begin to try again.

Thursday I have orientation for my new job. I am pretty excited to be back in the work field, since it's been like 4 years since I have had a "real" job. Babysitting was fun, I really enjoyed Alexa but it is time for something new, something that makes a bit more money and still does not take away from my time with Kadyn. Tax time will be more exciting for me now also.


Life is GOOD :D

Kadyn's Name

His Name is now on his wall :D

Painting Shelves

So in my living pretty much everything is black. The walls are yellow, picture frames are black, the word Love is black.

But yet these white shelves hung on the wall, looked so....out of place. It was time for a change. So I went to Walmart, as expensive paint was not needed for shelves, and bought BLACK paint. So it isn't a big creative deal, but it is what made my living room more homely.

Before:

After :D

Although easy, it was a lot of work. All apart of making this house, our home!!!