We are home. They decided the best thing for him was to be home. They don't know why he is just spiking fevers and then them just going away. They re did the CT scan and it looked better from yesterday today. The final reason that they think, maybe his shunt was blocked and he started getting a little bit of pressure which will cause fever too, and then some how it flushed itself out while they were pressing on his reservoir. They don't know. But he woke up today and was happy. He had a couple small seizures but they said if he has any more big ones to just bring him back (duh)
Tuesday, March 3, 2009
It's hard. It really is hard. I try and do all I can for him and we get these set backs and I feel like what I do just isn't enough. I'm becoming just a little frustrated. We keep missing therapies because he is in and out of the hospitals, and they tell me when he goes home, to limit his activity for a few days so it's hard to just keep him quiet and chill. I am going to put kadyn back on his vitamins and do everything possible to get him better. Enough is enough. I believe its time for a second opinion.
Posted by Sara at 3/03/2009 09:24:00 PM