SSI, Social Security Income. It is suppose to be for those who are disabled. Now everyone's definition of disabled is different, but I think we can all agree if your child has a condition but it's not affecting them, and they are developmentally typical for there age, they should NOT receive this money because they are NOT disabled.
Kadyn is not a typical 6 year old. He can not sit up, he can not walk, talk, self feed or do the self care necessary to care for himself. He needs a wheelchair, he goes to a school for handicapped children. He is still in diapers, and can not wipe his own butt. Yet he doesn't qualify per the state of Michigan for SSI, although they agree he is 100% disabled? Kadyn has Hydrocephalus, Epilepsy, Chiari Malformation, and many other little conditions that actually affect his life. He has had over 30 surgeries, 27 which were for his shunt, yet he can't get a dime. In all honestly we are in a spot now where we don't really need it. I was going to save it up and put it away for Kadyn for when he gets older. Harvey and I won't live forever and someone will have to take care of Kadyn. He will always need around the clock daily care.
I see so many parents thinking because their child was born with a condition that they need SSI. No they don't. Having a condition does not entitle your child to money unless it affects their life daily. You have no right collecting money that should be going towards another family who cares for a disabled person, not you at all.
With all that said, I feel a lot better. Kadyn is doing great and so is Kyle. Been way tooo busy being a mom to my kiddos to actually update my blog.