Update on Kadyn

So it's been a rough go lately. Seizures are happening weekly, they are stronger and lasting longer then ever before. I can't seem to get him out of them when he has started. So surgery is in his future now. We are going to place an VNS and start him on a new medication. He has to have an ekg first before starting this medication. I'm not even sure if I 100% want to start him on the medication. With everything changing so quickly im scared. More surgery for Kadyn is scary. It's like he can not go one year without a surgery. It's heart breaking. We will have months of a good go and the. We have months of bad. Kadyn needs a break and I'm hoping the VNS will bring that.